My son, Cody James, has been diagnosed with Down Syndrome at about 12 weeks gestational age (by ultrasound). Around 16 weeks, the perinatologist also noticed a hole in his heart, which is a heart condition called Tetrology of Fallot and will need heart surgery when he's around 3 to 4 months old. All of this sounds very overwhelming to parents, right? Surgery on a small precious baby?! It is scary! It was such shocking and devastating to hear all this news while I should be so excited about our second child. ( We also have a 20 month old son.)
But God is taking care of us and I have such faith in God that I know this is the journey and ride He wants my husband and I to go on. With help from a loving, supportive family and church family, they will also help us with our special little guy. We still have much to learn even after learning by reading and watching books and videos about children with Down Syndrome, but what I do know is that I will love him so much! I still feel unprepared, but I know God will lead us to do what's best for our son. I'm so blessed and he is going to bless us in more ways than we will know!
